I love love love how the Hunter family is handling the situation. Just the other day, they put out a plea on their blog for a research team--basically anyone who could find any kind of GBM cancer treatment that had been done with any kind of success. The word from Josh (Ava's dad) is that they've received all of the resources they can handle and are officially shutting down the research team! They'll be combing over the details while they await a final diagnosis from the doctors and will be praying for wisdom in deciding upon the best course of action for Ava.
I wanted to share just a couple of excerpts from Josh's blog:
Many of you have asked us how Noah is doing. He is doing well. He is fully aware of the challenges ahead and is fired-up about being part of "Team Ava" as we readjust our lives to get her better. He is a great kid and loves his sister. He knows that "Hunters don't quit and Hunter's don't whine". Those two things have been built into him since he was born (just like they were in me)...they will serve him well. He's as ready as any 11 year old can be to join in the battle.
The Onc Doc came in today and said "It may be a few days before we have confirmation of the diagnosis." I said, "No problem, we aren't anxious or worried. It is what it is and we are gonna do what we have to do." He looked perplexed that I wasn't more concerned and then he left the room. What he doesn't know is that I trust God for Ava's health, not whatever plan he and his cohorts put together. God is the healer...the docs just help the body do what God created it to do. I think he forgot that today. All the best docs in the world can't heal a body that isn't supposed to be. They are mere men with an opinion. Granted, they went to school for a million years to form that opinion, but at the end of the day...it's all a best guess.
That's why leaning on God makes most sense. I don't mean sitting idle. I mean trusting Him to lead us on the right path for Ava. I care little who tells me I'm nuts if I am following what God has told me. I don't ever hear an audible voice, but I expect Him to open the doors that need to be open and close the ones that should be closed. My promise is to walk through the open ones with Lisa as we pursue healing for Ava.
Please keep praying for Josh, Lisa, Noah, especially Ava, and the entire Hunter family.
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UPDATE: Ava is home!
We reached milestone 1. Ava is well enough from her surgery to be on her own. We packed up the uhaul and left the hospital at about 1pm today. That was great to get out of there. Ava doesn't miss it one bit. That victory was enough to get us to this moment...the real work begins now.
The second part of the mission is to get Ava well and rid of cancer. Honestly, it's hard to even type that. We know the journey ahead is long and arduous. We pray that we will have the strength to lean on God each day and look for only what He wants from us for that day. I'm not very good at that. Fortunately, Lisa is. So, at least I have someone to look up to.
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